We are committed to protecting your privacy.

We firmly believe that electronic security and privacy are necessary for the continued success of the Internet. In support of this, we only use the personal information that you provide to create a more personalized and enjoyable experience for you.

Support Our Mission

Privacy statement

All information provided is only used to provide personalized content and services. Any account information you supply will be used only to process requested commerce transactions or to contact you regarding a specific transaction. We may also use this information in order to generate aggregate reports that help us determine how to improve our users’ experience. This data is anonymous and does not contain any personally identifiable information.

We will not disclose your user information to any outside organization without your consent. However, we may disclose user information to the government and/or third parties when we have reason to believe that disclosure of such information is necessary to identify or bring legal action against someone who may be violating our Terms and Conditions or otherwise causing harm to the Thoracic Aortic Disease (TAD) Coalition or anyone who could be victimized by such activities, and where otherwise required by law or by legal process.

We may also use your contact information to e-mail you newsletters that inform you of upcoming events of the TAD Coalition.


About Your Privacy
Your privacy is important to us. The following explains our online information practices and the choices you can make about the way your information is collected and used.

Should you have a question relating to our privacy policy and practices – or wish to review or correct any personal information we may have on file for you – please contact us at:

TAD Coalition
c/o The Marfan Foundation
22 Manhasset Ave
Port Washington, NY  11050

What information do we collect? How do we use it?
When you enter into a transaction with us (registering for an event, buying a product, or seeking information), we may need to know specific information in order to process your request.

Our site’s forms may require you to give us contact information (like your name, e-mail and address). We may use the contact information from these registration and survey forms to send you information about other programs or events of the TAD Coalition. You may opt-out of receiving future mailings. See the choice/opt-out section below.

When you order products or services from our site, we need to know your name, e-mail address, mailing address, credit card number, and expiration date. This allows us to process and fulfill your order and to notify you of your order status. For more details, see the section below about online security.

We may use the information we collect to notify you about important changes to the site, new services or features offered by the TAD Coalition, and special offers and information we think you will find valuable. If you would rather not receive this information, please contact us through one of the channels identified in the choice/opt-out section.

We also collect anonymous, non-identifiable information about visitors. When you visit our site, our server automatically records your domain (service provider), operating system and web browser type/version as well as the time and date of your visit on a particular page. The information automatically recorded by our server is used only for statistical purposes so that we can manage our site and better serve our visitors. Our server does not and cannot record identifiable information such as your e-mail address.

“Cookies” are small pieces of information that are stored by your browser on your computer’s hard drive. Our cookies do not contain any personally identifying information. Most web browsers automatically accept cookies, but you can usually adjust your browser to prevent them. This could limit your ability to use certain features on our site, however.

Our site uses cookies to uniquely identify users’ machines so that we can monitor site usage, traffic and trends. Cookies also may be used for features such as keeping track of the contents of a shopping cart or helping to deliver more personalized content.

Online Security
When you are asked to provide personal, private and/or financial information (such as a credit card number), we use state-of-the-art security to safeguard your data. The secure server software, SSL (secure sockets layer), encrypts or encodes all information you enter before it is sent to us. Furthermore, all of the customer transactional data we collect is protected against unauthorized access with the use of digital certificates. Digital certificates for the National Marfan Foundation are issued by RSA Data Security, Inc., a trusted provider. To learn more about our online security, simply click the “security” icon (usually a padlock) at the bottom of your browser window.

Does TAD Coalition disclose the information it collects to third parties?
The TAD Coalition does not sell, trade, or rent your personal information to others. It will only be used as stated above by members of the Coalition.

Our site provides users the opportunity to opt-out of receiving communications from the TAD Coalition. To request that you not receive particular communications, please send an e-mail to tadcoalition@marfan.org. Please allow up to five business days for your request to be fulfilled.